Alzheimer’s diseases progresses with time and has no cure. Effective communication can help patients live a meaningful life.
Age is one of the biggest risk factors for Alzheimer’s disease and the percentage of people suffering from this disease is increasing dramatically as the years go by. According to US-based Alzheimer’s Association, the percentage of people aged between 65 to 74 years who have Alzheimer’s is five percent. This grows to 13.1 percent between the ages 75 of 84, and 33.3 percent at the age of 85 years and above. Alzheimer patients face memory loss, problem solving, language difficulties, along with feeling disoriented; and need extra care at home. The role of the caregiver in an Alzheimer’s patient is paramount, and there is an integral need for effective communication. So, learning some tips for communicating with an Alzheimer’s disease patient may be a good idea.
Neurologist Dr Balaji and psychiatrist Dr Shivangini Singh, tell Health Shots about effective communication strategies when it comes to taking care of Alzheimer’s patients.
What is Alzheimer’s disease?
When someone has Alzheimer’s disease, it means that there usually is a problem in the brain that makes it hard for people to remember things, think clearly and act normally. “This progressive brain disorder interferes with a person’s memory, thinking, and behaviour. It gradually worsens over time, often beginning with mild memory loss and eventually leading to severe impairment in daily functioning,” explains Dr Balaji.
Understand more about Alzheimer’s disease here.
Daily life challenges faced by Alzheimer’s patients
Here are some common symptoms of Alzheimer’s disease:
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1. Memory loss
Patients face trouble remembering new information. They tend to forget recent events or conversations, this happens in the early stages.
2. Trouble solving problems
Patients finding it hard to figure things out or make plans.
3. Confusion about time or place
The patients are not sure about what day it is or where they are.
4. Changes in mood or personality
The patients suddenly feeling upset or anxious, mood swings, loss of interest in activities, wanderings.
5. Problems with everyday tasks
Alzheimer’s patients struggle with simple tasks, like cooking or getting dressed. This happens usually in the later stages.
Also Read: Alzheimer’s disease: Signs your elders may be suffering from it
Alzheimer’s disease not only affects the memory but also the thinking capacity, communication skills, self-care abilities and the person’s behaviour overtime. “It is a gradual process with no cure available till date. Hence, lifestyle and behavioural changes are the key for best response and improvement. Effective communication can make a major difference in improving the quality of life of the patient,” says Dr Singh.
How to communicate with Alzheimer’s patients?
1. Change your approach
It is very important for the caregiver to make eye contact all the time while talking to an Alzheimer’s patient. Also, remember to address the individual by his or her name. “It is essential to pay attention to your body language, tone of voice, and how you look at the other person, while communicating with an Alzheimer’s patient,” says Dr Singh.
2. Interaction
Good interaction is the key to effective communication with an Alzheimer’s patient. Encourage dialogue that is reciprocal for as long as you can. “Also, remember to use nonverbal cues, such light touch, in addition to speech,” says Dr Singh.
3. Be empathetic
Act in a kind, caring, and straightforward manner. As you converse with an Alzheimer’s patient, hold their hand. Even if the person is facing difficulties in grasping, it is very important for the caregiver to be receptive to their worries. “Allow the patient to make whatever decisions that he can make. If an Alzheimer’s patient becomes angry, the caregiver must remember to be patient. Always remember that it is the sickness that is “talking” during such altercations,” says Dr Singh.
4. Talk effectively
While interacting with an Alzheimer’s patient, be direct and specific in your conversation. Make you that you are providing clear and detailed directions. “Make sure to give the directions again, if you have to, and give yourself more time to hear a response. Aim to avoid interjecting or speaking to them in a baby voice or doing baby talk,” says Dr Singh.
5. Use resources
It is very important to help Alzheimer’s patients feel connected. “Feel free to show pictures to patients, or other familiar cues to improve discussion,” says Dr Singh. This also helps them stimulate their brain, it improves memory and prolongs cognitive ability.
How does the disease progress?
Alzheimer’s disease progresses through distinct stages, each characterised by specific symptoms and levels of impairment. “In the early stage, individuals may experience mild memory lapses and subtle changes in cognitive function. As the disease advances to the middle stage, memory loss becomes more pronounced, along with increased confusion and difficulty with tasks like planning and organizing,” explains Dr Balaji. In the late stage, severe cognitive decline occurs, leading to profound memory loss such as forgetting names of family members & everyday objects, loss of verbal communication, and dependence on others for daily care.
How long can a person live with Alzheimer’s?
People can live with Alzheimer’s for different amounts of time. “On average, it’s around 4 to 8 years after they’re diagnosed. But some people live longer, and some don’t live as long. It depends on many things like age and overall health,” says Dr Balaji. Quality of care, access to medical treatment, and support from caregivers also play significant roles in determining life expectancy.